EuroWilson

Link Organisation

ERN Rare Liver Wilson Disease

Link Organisation

Detailed information about Wilson Disease

First Centre for Rare Diseases in North Rhine-Westphalia (ZSEB)

Link Institution

The University Hospital Bonn has founded the first Centre for Rare Diseases in North Rhine-Westphalia. The aim of the ZSEB is to advance the diagnosis and treatment of such diseases. The centre was officially opened on 18 February 2011.

Alliance of Chronic Rare Diseases (ACHSE)

Link Organisation

The Alliance of Chronic Rare Diseases (ACHSE) e.V. is a network of patient organisations of children and adults affected by (chronic) rare diseases and their relatives.

German Network of Hereditary Movement Disorders, GeNeMove

Link Research

Society for Paediatric Gastroenterology and Nutrition e. V. (GPGE)

Link Children Institution

Paediatric gastrology is a branch of medicine - the Society for Paediatric Gastroenterology and Nutrition (GPGE), which deals with the examination, diagnosis and treatment of diseases of the digestive system in children.

Wilson's disease: explanation for children

Download Children Guide

Living with Wilson's disease

Podcast association

Conversation between our patron Ingo Hoppe and Heidi, a patient.

Young patients

Podcast Young Patients Association

Conversation between our patron Ingo Hoppe, Alanis Roth and Wiebke Papenthin