Helping and supporting each other
Welcome to the website of the Wilson's Disease Organisation Germany. We are a non-profit and nationwide active organisation that has been providing information and counselling to people affected by this rare copper storage disease and their relatives in all areas of life since 1990.
Wilson‘s disease: a copper storage disorder
In the hereditary disorder Wilson‘s disease, the excretion of copper via the bile ducts is impaired due to a genetic defect. Copper ingested with food is mainly stored in the liver. From there it can enter the brain, the kidneys and the cornea of the eye.
Years of harmful copper accumulation can lead to hepatitis, liver cirrhosis and neurological deficits.
The earlier Wilson‘s disease is diagnosed, the sooner effective drug treatment can be started, ideally even before the onset of the first symptoms. Regardless of how severe or mild the symptoms of Wilson‘s disease are, it is crucial that patients take their medication reliably and, if possible, at mealtimes - for the rest of their lives.
You can find detailed information on the page Disease.
What we offer
- Information, counselling, help FOR people with Wilson‘s disease, relatives, doctors and interested parties FROM people with Wilson‘s disease and their family members
- Arranging contacts among those affected
- Organisation of events on Wilson‘s disease and patient-relevant topics, educating the public
- Supporting research concerning Wilson‘s disease
You can find more detailed information on the page Organisation.
Would you like to get information or advice on the subject of Wilson‘s disease? Please do not hesitate to use our contact form.
Your donation helps!
We appreciate every donation, no matter how small, that is credited to our organisation account:
| Name | Morbus Wilson e.V. |
| IBAN | DE72 7115 0000 0000 0426 55 |
| BIC | BYLADEM1ROS |
| Bank | Sparkasse Rosenheim - Bad Aibling |
As we are a non-profit organisation, your donation is tax-deductible. Please state the address to which your donation receipt should be sent in the bank transfer note.
Patron: Ingo Hoppe
'I like being a patron because I want everyone to be able to realise their full potential and live a self-determined life.'
Listen to my podcast “Living with Wilson’s disease (de)”
Ingo Hoppe, presenter, author and coach
SE-ATLAS: Atlas for rare diseases
The web-based information platform SE-ATLAS provides an overview of care options for people with rare diseases in Germany.
In the SE-Atlas for ‘Wilson's disease’, most of the listed facilities for Wilson's disease can be found well-structured on a map.
All known to us specialists and addresses that can be contacted for Wilson's disease can be found under Specialists.
